Mind of the Universe Genetic Privacy: Ethics, Implications
Explore ethical issues surrounding genetic data disclosure and privacy in biobanks and genetic tests.
Explore ethical issues surrounding genetic data disclosure and privacy in biobanks and genetic tests.
This course delves into the complex ethical landscape of genetic privacy in an era of increasing genetic data collection and sharing. Led by Professor Robert Zwijnenberg, students will critically examine the cultural, philosophical, and political tensions surrounding genetic privacy. The curriculum covers key topics such as ownership of genetic data, responsibilities towards family members regarding genetic information, and the ethical implications of public genetic databases. Through engaging discussions, case studies, and creative exercises, learners will explore diverse stakeholder perspectives, including those of corporations, researchers, consumers, and patients. The course uniquely incorporates artistic and cultural viewpoints to enrich the debate, encouraging students to consider emotional and cultural factors often overlooked in scientific discussions. By the end of the course, participants will develop and share policy recommendations on regulating genetic information disclosure while considering privacy concerns, potentially influencing future policymaking in this critical field.
4.1
(16 ratings)
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What you'll learn
Understand the concept of genetic privacy and its implications
Analyze ethical issues surrounding genetic data disclosure
Explore diverse stakeholder perspectives on genetic privacy
Evaluate the balance between individual autonomy and public interest in genetic research
Examine the role of art in enriching debates on biotechnological developments
Identify cultural and emotional factors influencing genetic privacy discussions
Skills you'll gain
This course includes:
1.7 Hours PreRecorded video
2 quizzes,1 peer review
Access on Mobile, Tablet, Desktop
FullTime access
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There are 5 modules in this course
This course offers a comprehensive exploration of genetic privacy issues in the context of advancing genetic technologies and data sharing practices. It covers the ethical implications of genetic data disclosure in biobanks and through genetic tests, examining the tensions between individual privacy and potential societal benefits. The curriculum is structured to provide a multifaceted view of the topic, incorporating perspectives from various stakeholders including researchers, patients, corporations, and policymakers. A unique aspect of the course is its integration of artistic and cultural viewpoints to enrich the ethical debate. Through a combination of lectures, discussions, case studies, and creative exercises, students will develop critical thinking skills and formulate their own policy recommendations on regulating genetic information disclosure.
What is on Your Mind?
Module 1 · 3 Hours to complete
Open up Your Mind
Module 2 · 2 Hours to complete
Connect your mind
Module 3 · 3 Hours to complete
Make up your mind
Module 4 · 3 Hours to complete
Finalization
Module 5 · 1 Hours to complete
Fee Structure
Payment options
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Instructors
Art historian and artist
Lotte Pet (BFA, BA, MA) is an art historian and artist whose research explores the role of art in gaining knowledge within scientific and technological discourse. She focuses on the place of art in bioethical debates, while advocating for its autonomous force. Currently, Pet works as a researcher and educational staff member at Leiden University.
Professor of Art and Science Interactions
Robert Zwijnenberg is a professor of Art and Science Interactions at Leiden University. With a background in civil engineering and philosophy, he earned a PhD in philosophy from the University of Amsterdam. His research and teaching focus on the role of contemporary art in academic and public discussions about the ethical, societal, political, legal, and cultural implications of biotechnological innovations. Over the past eight years, he has organized and taught the Leiden Honours Class "Who Owns Life?", which addresses the ethical, legal, and economic dimensions of biotechnological advancements. The course highlights the artistic perspective, offering participants hands-on, lab-based workshops led by bio-artists to engage with contemporary artistic practices.
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4.1 course rating
16 ratings
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